Myeloma Awareness Week

Lincolnshire East CCG is supporting Myeloma Awareness Week, 21-27 June 2019, where the emphasis this year is about raising awareness about the condition and to connect everyone affected by the illness to sources of information and support for every step of their myeloma journey.

Myeloma, or multiple myeloma, is a type of bone marrow cancer.  It often affects many places in the body, which it why it is called multiple myeloma.  Commonly affected areas include the spine, skull, pelvis and ribs.

Myeloma does not usually take the form of a lump or tumour.  Instead, the myeloma cells divide and expand within the bone marrow, damaging the bones and affecting the production of healthy blood cells.  Indeed in the early stages, myeloma may not cause any symptoms.  It is often only suspected or diagnosed after a routine blood or urine test.  However, myeloma will eventually cause a wide range of problems including:

  • A persistent dull ache or specific areas of tenderness in your bones
  • Weak bones that break easily
  • Tiredness, weakness and shortness of breath
  • Repeated infections
  • Less commonly bruising and unusual bleeding  - such as frequent nosebleeds, bleeding gums and heavy periods

Dr Andrew Doddrell, Chair of Lincolnshire East CCG said:

“If anyone is showing any of the signs associated with myeloma they should make an appointment at their GP practice.  While they are unlikely to be caused by cancer, it is best to get a proper diagnosis.

“Your GP will examine you to check for bone tenderness, bleeding, signs of infection, and any other symptoms that suggest you might have myeloma.  They may also arrange blood and urine tests that can detect abnormal proteins produced by myeloma cells. 

“If myeloma is suspected, you will be referred to a specialist in blood conditions for further tests and treatment.”

Multiple myeloma is an uncommon type of cancer, with around 4,800 new cases diagnosed each year in the UK.  It is not known exactly what causes the condition, though it is more common in:

  • Men
  • Adults aged over 60 – most cases are diagnosed at around the age of 70
  • Black people – multiple myeloma is twice as common in black populations compared with white and Asian populations

There is currently no cure for multiple myeloma, but treatment can often help control it for several years. 

If you have been diagnosed with multiple myeloma you may find it useful to contact a local or national support such as Myeloma UK.  The Myeloma UK website also has more information about how they can help you and signpost you to local support groups.

Updated 24/06/2019